dealing with that disturbing “D” word
— being a midwife to the dying

Death is the final taboo in our culture. We can talk about illness and religion, politics and sex, gender and race issues, but the D word is still difficult for people to utter in polite company….

From Last Acts of Kindness: Lessons for the Living from the Bedsides of the Dying, by Edith Redwing Keyssar.

I have a unique relationship with death. My father was an undertaker, and we lived in an apartment above his business. Contemplating death and dying — my own and others’ — has been a part of my life since childhood. I have sat vigil during the hours and days of the deaths of both of my parents. At the age of 71, I am closing in on my final years. I have no control over when or why I will die; but I am learning about the choices I have about “how”.

After leaving a comment on a post on Time Goes By about Judith Redwing Keyssar’s book (quoted above), I have had a chance to read that book myself. And, doing so comes at a particularly relevant time in my life as I await my first assignment as a hospice volunteer.

During the intense training that I had to undergo, I learned about my role and responsibilities as part of a hospice team and examined my reasons for choosing this kind of volunteer service. I found that the experiences that Keyssar shares in her book take whatever personal motivations I have for becoming — in her words –“a midwife to the dying” and draws them into an even greater context of compassionate and cosmic significance. As part of her stories, Keyssar reiterates the point that it doesn’t matter what one believe about an “after-life;” the focus of her message is to live fully while embracing the fact that we, after all, are all “terminal.”

At the end of her book, she provides a list definitions, internet links, and bibliographical references if the reader chooses to further explore the range of information available about compassionate care during the final stages of life.

The final chapter in Keyssar’s book is a poetic Epilogue (see below) that captures the intent and the spirit of the mission of those who choose to honor and celebrate the final, fleeting days (and sometimes months and years) of a human life by becoming part of a palliative care and/or hospice team.

Epilogue
Job description For Any Member of a Palliative Care Team

I am here to witness
the sacred hearts
broken open.
Friends,lovers, families
whose loved ones die in their arms,
in the homes, in their beds, in hospitals or other places.
Peacefully, nor not.

I am her to witness
the sanctity of human life
as the spirit is released from the temple
to join once again, with the invisible cellular infinity
of the Universe,
the mitochondria of the Milky Way,
becoming energy to light the stars,
since we know —
the energy we manifest as a particular human being,
like any other,
can neither be created
nor destroyed.
God, by any other name by any name, by many names,
by no name,
Is
One.

I am here to witness
the breath
as it enters the body
and exits for the last time.
The miracle of birth.
The miracle of death.
The miracle of each moment in between:
Life
the infusing of consciousness
into each and every cell
enduring every moment
we are here
on earth.

I am here to witness
to feel
to experience
to honor
to know that Love is eternal.
to share this blessing
in gratitude.

and to perform any other duties
required.

Last Acts of Kindness is a book that should be read by everyone who expects some day to die.

____________________________________________________________

As I was writing this post, today Ronni Bennett at Times Goes By posted another piece that includes additional thoughts on death and dying. The conversation continues.

that long-gone gold

Those really were my golden years — those four college years between 1957 and 1961. And so I was willing to help plan our 50th class reunion. I even sewed a big 50th reunion banner and put up a class reunion blog. That was the fun part.

But it turned out that my closest “girl” friends couldn’t be there for the part that was supposed to be the most fun. When I checked in with one of them a month before the event, I found out that she had moved into an “assisted living” facility (in the same nursing home building where her husband, also a good friend of mine, was confined to a wheel chair with a deadly combination of Parkinson’s and Alzheimer’s diseases). She told me that her daughter had taken away her car and license, and so there was no way she could attend the reunion.

(If she is there, will I not be far behind, I wonder. We are the same age, same height, same coloring; we shared wardrobes for four years and together descended on Fort Lauderdale, Florida for one glorious Spring Break. Life is not fair.)

A week before the event, my other close friend called to tell me that she had just had a mammogram and was told to go in for a biopsy. The biopsy turned out to be early Stage 1 breast cancer. She had a lumpectomy yesterday and will proceed with the recommended treatment. Life is not fair.

So, did I have fun at my 50th college reunion?

Well, I have to admit that there was a certain amount of pleasant nostalgia that propelled me through my planning committee tasks. Some things went right. Some things went wrong. What went wrong had to do with logistics; what went right had to do with having a chance to connect with some of the 50-years-older people whom I knew and liked back in those golden years.

As a female college freshman back in 1957, sharing a room in a small “group house,” I lived under rules that today’s female college freshmen would never tolerate: we had curfew hours, dress codes, no males allowed beyond the front room and not even there after 10 pm. Two of the girls who shared that group house with me came to the reunion. Seeing them again was part of the fun.

At the reunion dinner, a table covered with memorabilia from those golden years included a copy of the annual literary magazine from 1959. No, it didn’t include any writing by me. In 1959 I was too busy dancing in college musicals and writing a gossipy column for the college newspaper. And drinking beer. And dating. And joining a sorority. And cutting classes to TGIF. Many of my reunited classmates tell me that they remember me as always smiling and happy. Heh. Why not. Daddy was paying the bills and I was off absorbing the joys of life, the universe, and everything.

That’s right. I was no scholar. I managed to balance out my Cs and Ds with a greater number of As and somehow graduated as the B+ person I continue to be. But I digress.

From your absinthe tinted green dreams and
soulless wanderings across deserts of the mind, came truth–
ice-essence truth……

On page 32 of the literary magazine, I find a poem that begins with the above lines — lines inscribed on the flyleaf of a paperback book of Rimbaud’s poems by the talented young man who wrote the poem and gave me the book. I learned that he passed away a year and a half ago. I wonder if he had still had that tousled red hair, that red beard, that passionate, dark, beat-poet intensity. He almost seduced me. But I wasn’t ready yet, back in 1959.

The literary journal also had some pieces by his best friend, who also was my friend, and whose family became friends with my family after we both married and had kids. He is still writing. We lost touch more than a decade ago, although I had learned about his wife’s tragic illness and death sometime along the way.

Bob decided to come to the reunion at the last minute, and we sat together at dinner, recalling those mellow days and nights when we hung out together in front of his future wife’s sorority house — he and his dark-haired Irish lovely, and me with my brooding red-headed boy. And he asks me if I am happy. And what I can answer is that “I am not unhappy.” We plan to keep in touch. I went and ordered his recent book of short stories.

I supposed the ego-stroking highlight of my class reunion (which was part of the university’s Homecoming Weekend) was having a good-looking gray-haired guy (who was a college year behind me) come up to me to tell me that he still remembers the first time he saw me. I was sitting at the long table at the bar we all went to on Friday afternoons. He said that he remembered what I was wearing — a brown skirt and sweater. And I was smiling. And he thought I was gorgeous.

I guess it was a good reunion after all.

What to tell your kid about dying
when you don’t believe in heaven.

Your eight-year old can’t go to sleep because he’s crying so hard. He’s crying so hard because, he says, he doesn’t want to ever die and he doesn’t want anyone he knows to ever die because he doesn’t want to be alone.

You don’t really believe in “God,” and don’t believe in heaven. You’re not religious, and the Golden Rule is about the closest you come to embracing any doctrine, although you try to pass along a moral and ethical code that you hope he understands and continues to live by.

But what about “after?” What about after this life? What do you tell your eight-year old that will calm his fears without outright lying?

What you do is write a book that explains who and what we are in a way that will address his fears yet still be in the realm of what might actually and scientifically happen. ( After all, Carl Sagan thought so.)

And you call this book Spark.

Go over online and read through Spark — and see if it’s the answer you’re looking for.

training my brain
while playing with plarn

“What,” you’re thinking, “is plarn?”

If you’re a crafter or recycler, you might know what “plarn” is. If not, here’s a definition:

Plarn is a creative way to recycle plastic bags by turning it into yarn. Plastic bags made into yarn = plarn. Green crafter’s have been using plarn in place of traditional yarn to crochet and knit all sorts of items.

I started experimenting with plarn last summer,when I improvised a crocheted tote bag for groceries.

plastic2

The bag was easy to make; making the plarn with which to make a bag, however easy, is tedious and time-consuming — a good thing with which to occupy your hands while watching television so that you keep your hands out of the potato chip bag.

Now, switching to the “brain training” part of this post.

In a recent post at Time Goes By, “Our Plastic Brains — Even in Old Age,” Ronni Bennett reports:

Earlier this month, The New York Times published an essay from Dr.[Oliver] Sacks about how our brains are almost miraculous in their ability to stretch, adapt, overcome injury, retrain themselves and perform feats we could not imagine before.

In addition to giving me an excuse for talking to myself, the TGB post got me thinking about the brain benefits of learning to make and combine knitted geometric shapes.. I could have used regular yarn, but using up our plastic bags gave me a practical point to my creative math exercises.

I started off trying to separate my plastic bags by color. I had a lot of red and white bags from Target, CVS, and Macy’s, so that’s what I started with. Using instructions from a wonderfully simple book, “No-Pattern Knits” (which I bought used cheap from Amazon.com), I made one right triangle, and then added another triangle to make a square (which is one side of the tote bag).

You can see from the photo that the knitted ridges go one way on one triangle and another way on the second triangle. That’s where the Pythagorean Theorum has to be used as well as some algebra to figure out number of stitches for xxx number of inches. I did the second triangle wrong the first time and had to rip it out and figure it out all over again — finally correctly. To make the square into a rectangle, I knitted extra rows on each side of the square.

I was never terribly good at — or interested in — math, and spatial relations was the part of the IQ test I always did the worst at. But combining my passion for knitting with a necessity to use math skills has become a fun way to keep training my brain.

For the second side, I wanted an asymmetrical look, so I used up some bags of other colors and made a mitered square that I positioned as a diamond — with other triangles knitted off the edges to form a large square. Then I added on to one side of the square to make an rectangle.

I made the tote/purse a size in which I could fit a purse organizer that I had purchased a while ago that was too big for the purses I already own. I attached the purse organizer to the inside of the plarn puse with sticky-back velcro.

Plarn is tricky to work with in some ways. The strips can stretch and break as you work, and if you sew it with regular thread, the thread can cut through the plastic. So whenever the plarn purse’s construction required me to sew something, I sewed with a strip of plarn and a yarn needle.

I have every intention of actually using this plarn purse. If nothing else, it’s a conversation piece.

If I ever make another one, I’m going to spend some time coordinating and combining the plastic strips to vary the colors. It’s all a learning process. Good for my brain.

learning vs achievement
and the happiness factor

Achievement
1. The act of accomplishing or finishing.
2. Something accomplished successfully, especially by means of exertion, skill, practice, or perseverance

Learning
1. The act, process, or experience of gaining knowledge or skill.
2. Knowledge or skill gained through schooling or study.

Learning and achievement are not at all the same thing, although one can lead to the other. In focusing on the goal of achievement and not the process of learning, education reformers are putting the cart before the horse. You can’t have high achievement without engaged learning. Yet, I see little attention being paid to changing and improving the way that learning (and, therefore, teaching) is put into process in schools.

A focus on the goals of competition and achievement, while great for trying to encourage success and ensure statistical accountability, is stressful and not very enjoyable for the learners themselves, as the people of China are discovering.

One obstacle to happiness in China, Peng said, is the intense culture of competition: “When you have that many people all fighting to achieve the same narrowly defined goals, it becomes a zero-sum game,” he said. “That’s why we need to change the paradigm of what success means and come together for the greater good of Chinese society,” Peng added. “That’s why we need to talk about the science of happiness.”

People seem to be happiest when they are involved in the process doing something that they enjoy doing.

Happiness:

a : a state of well-being and contentment : joy b : a pleasurable or satisfying experience

Most Americans interested in educational reform, including President Obama in his State of the Union address (who looks to China as an example of successful education), focus on raising achievement levels — not a bad ultimate goal. But what no one is grappling with is how to make the process of learning (which is the process one needs to go through before one can demonstrate a high level of achievement) something that students will enjoy (and, therefore, happily and willingly engage in).

If there were a way to replicate, in a classroom, how my homeschooled grandson is learning, more kids would find themselves happy to be engaged in learning, in discovering, in experimenting, in questioning, in hypothesizing — in learning how to enjoy the process of learning and how to apply that learning in meaningful ways.

He is eight-and-a-half years old, and he is not expected to sit doing a task for more than 15 minutes at a time. He rarely does worksheets and learns math and science through a variety of games and projects that involve both. (The internet is overflowing with resources.)

As an example of making learning enjoyable, I quote here from his mom’s recent blogpost about their latest learning adventure. You can read the whole post, with photos, here.

We’ve begun the Age of Exploration! Daring adventures, wrong directions, pirates, new lands! Originally I intended to launch more in depth into the Middle Ages this year. But as we completed the Revolutionary War and pulled out the books/stories/maps for the Middle Ages, it felt — wrong. Our Revolutionary War unit had so much to do and make, and suddenly, what I had next began with reading — not that we didn’t have that before as well, but all of a sudden, the work was different. It felt like — work. So I returned to what I did at the beginning of our year. I looked to the student and dared to ask, “Is this interesting to you? Do you WANT to learn about the middle ages right now?” His tepid reaction pretty much said it all. So I jumped online to look at something that had caught my eye before. The Time Travelers History Studies. The New World Explorers activity pack. Chock full of coloring, cutting, cooking, science, creating — making journals, mapping, lapbooking all while learning about explorers, myths and legends, early navigation, and more.

ship

As a home/school, our home is one big classroom, with world maps hung up in the living room (along with the usual kinds of wall decor). A separate small room holds floor-to-ceiling shelves filled with resource books, science experiments, a variety of learning tools — and, of course a desk. The family computer is in an alcove off the dining room, and he goes there to access Kizui as well as spelling and math learning programs. Every activity offers some kind of engaged and interdisciplinary learning — from a trip to the grocery store or a museum, to a walk in the woods. There’s also plenty of time for creative play as well as just plain running around outside.

It’s not as though no one concerned with education is trying to figure out how to revolutionize the learning process so that kids are happy to go to school. Unfortunately, though, it’s not the people who have the power to enable and make the changes. School administrators and teachers seem to be more concerned with everything about the educational system BUT exploring ways to make learning a more happy and engaging process for students.

But,over at Mind/Shift: How we all learn, for example, there’s a recent piece: Learning Happens Everywhere in the Future School Day that pretty much explains how

Students will be able to choose to engage in their learning through physical interactions with each other and their guides (teachers) while the VL [Virtual Learning] system is always available to experience learning in ways not possible, not affordable, or that are unsafe in the physical world.

The article ends with this (emphases mine):

Over the past decade (since 2010) there has been much debate about online learning and whether physical schools will exist in the future. Most thought leaders have concluded that physical school remains vital to a successful education but their design and layout has changed significantly to support a grade-less organization with experts – teachers as guides, coaches, and mentors – along with their students. As well, the best of home- and un-schooling are fully incorporated. The school campus is a support system and home base for learners and their guides (teachers, parents, community members). But, students are not required to physically be in school on a rigid schedule. They learn at home, on family vacation, and at their physical school. Virtual Learning is seamlessly available to connect students to each other, to their learning guides, to experiential learning, to content, and to other mentors and learners around the world.

“Give me a child until he is seven, and I will give you the man”. Thus goes the Jesuit saying, but of course it is true of all education. What we sow in childhood, we reap in adulthood.

If we want adults who can think, analyze, deduce — who can imagine, create, implement — who seek the truth and use it well — then we need schools, pre-K through high school, that give students of all ages chances to practice learning-as-fun.

How we ensure that all of these students are given access to the actual historical and scientific facts from which they can build their learning experiences has become another worrisome major challenge.

I am a New York State certified teacher, but, these days, I sure am glad that my grandson is being homeschooled.

My Blue America
Our Secular America (part 2)

[This piece is even more appropriate now than it was six years ago, when I originally posted it after the fiasco that was the election of George W. Bush. The archives link has been truncated for some reason, but I had a text version. And so I am re-posting, as a small lesson in history for those who don’t know. You can read Part 1 here.]

I am so sorry you feel this way. If you actually had a clue as to what made this nation great, you would quit trying to suck the life out of it. America was founded on great conservative christian values (the Ten Commandments). You are free in this country to think and for the most part do what ever you want. But you do not have the right to hijack this country with your socialist values that undermine our national identity and security. We will continue to fight you and the terrorist with every fiber in our bodies. Because it is you who invited the terrorist into our country to kill our family members.

The quote above is a comment left on my blogpost of 04/11/04 by someone calling him/herself “Righteous.”

Well, I say that those who don’t know our country’s history are bound to keep screwing it up.

Perhaps “Righteous” is referring to those “Christians” who fled from Europe to seek religious freedom, freedom from religious persecution.

Oddly enough,

Although they were victims of religious persecution in Europe, Puritans supported the Old World theory that sanctioned it, the need for uniformity of religion in the state. Once in control in New England, they sought to break “the very neck of Schism and vile opinions.” The “business” of the first settlers, a Puritan minister recalled in 1681, “was not Toleration, but [they] were professed enemies of it.” Puritans expelled dissenters from their colonies, a fate that in 1636 befell Roger Williams and in 1638 Anne Hutchinson, America’s first major female religious leader. Those who defied the Puritans by persistently returning to their jurisdictions risked capital punishment, a penalty imposed on four Quakers between 1659 and 1661.

In other words, those righteous Christian Puritans became just the kind of persecutors from whom they were running away. And we all know what they did to those poor old women they decided were witches, right? But that’s another long and horrible story that needs truth telling about.

And let’s not forget all those Native Americans that were displaced and persecuted and executed by all of those righteous Christian members of our military. (The United States Army Seventh Cavalry used gattling guns to slaughter 300 helpless Lakota children, men and women.)

I did not know then how much was ended. When I look back now from this high hill of my old age, I can still see the butchered women and children lying heaped and scattered all along the crooked gulch as plain as when I saw them with eyes still young. And I can see that something else died there in the bloody mud, and was buried in the blizzard. A people’s dream died there. It was a beautiful dream. And I, to whom so great a vision was given in my youth, — you see me now a pitiful old man who has done nothing, for the nation’s hoop is broken and scattered. There is no center any longer, and the sacred tree is dead. — Black Elk. Oglala Holy Man on the aftermath of the Massacre at Wounded Knee, South Dakota December, 1890

Oh, well, maybe my commenter was referring to our Founding Fathers — you know, the ones who were smart enough to use the structure of the Iroquois Confederacy to inform the creation of our Constitutional form of government:

On June 11, 1776 while the question of independence was being debated, the visiting Iroquois chiefs were formally invited into the meeting hall of the Continental Congress. There a speech was delivered, in which they were addressed as “Brothers” and told of the delegates’ wish that the “friendship” between them would “continue as long as the sun shall shine” and the “waters run.” The speech also expressed the hope that the new Americans and the Iroquois act “as one people, and have but one heart.” After this speech, an Onondaga chief requested permission to give Hancock an Indian name. The Congress graciously consented, and so the president was renamed “Karanduawn, or the Great Tree.”

With the Iroquois chiefs inside the halls of Congress on the eve of American Independence, the impact of Iroquois ideas on the founders is unmistakable. History is indebted to Charles Thomson, an adopted Delaware, whose knowledge of and respect for American Indians is reflected in the attention that he gave to this ceremony in the records of the Continental Congress.

Now, speaking of those founding fathers:

The Framers derived an independent government out of Enlightenment thinking against the grievances caused by Great Britain. Our Founders paid little heed to political beliefs about Christianity. The 1st Amendment stands as the bulkhead against an establishment of religion and at the same time insures the free expression of any belief. The Treaty of Tripoli, an instrument of the Constitution, clearly stated our non-Christian foundation. We inherited common law from Great Britain which derived from pre-Christian Saxons rather than from Biblical scripture.

[snip]

Although, indeed, many of America’s colonial statesmen practiced Christianity, our most influential Founding Fathers broke away from traditional religious thinking. The ideas of the Great Enlightenment that began in Europe had begun to sever the chains of monarchical theocracy. These heretical European ideas spread throughout early America. Instead of relying on faith, people began to use reason and science as their guide. The humanistic philosophical writers of the Enlightenment, such as Locke, Rousseau, and Voltaire, had greatly influenced our Founding Fathers and Isaac Newton’s mechanical and mathematical foundations served as a grounding post for their scientific reasoning.

A few Christian fundamentalists attempt to convince us to return to the Christianity of early America, yet according to the historian, Robert T. Handy,”No more than 10 percent– probably less– of Americans in 1800 were members of congregations.”

The Founding Fathers, also, rarely practiced Christian orthodoxy. Although they supported the free exercise of any religion, they understood the dangers of imposing religion. Most of them believed in deism and attended Freemasonry lodges. According to John J. Robinson, “Freemasonry had been a powerful force for religious freedom.” Freemasons took seriously the principle that men should worship according to their own conscience….

The Constitution reflects our founders views of a secular government, protecting the freedom of any belief or unbelief. The historian, Robert Middlekauff, observed, “the idea that the Constitution expressed a moral view seems absurd. There were no genuine evangelicals in the Convention, and there were no heated declarations of Christian piety.”

How about we let those Founding Fathers of ours speak for themselves about how they feel regarding mixing religion and government:

JOHN ADAMS:
I almost shudder at the thought of alluding to the most fatal example of the abuses of grief which the history of mankind has preserved–the Cross. Consider what calamities that engine of grief has produced! …in a letter to Thomas Jefferson.

But how has it happened that millions of fables, tales, legends, have been blended with both Jewish and Christian revelation that have made them the most bloody religion that ever existed. …in a letter to F.A. Van der Kamp, Dec. 27, 1816, 2000 Years of Disbelief, John A. Haught

The divinity of Jesus is made a convenient cover for absurdity. Nowhere in the Gospels do we find a precept for Creeds, Confessions, Oaths, Doctrines, and whole carloads of other foolish trumpery that we find in Christianity.

BENJAMIN FRANKLIN
Lighthouses are more helpful than churches. ….Poor Richard, 1758

The way to see by faith is to shut the eye of reason . ….Poor Richard, 1758

When a religion is good, I conceive it will support itself; and when it does not support itself, and God does not take care to support it so that its professors are obliged to call for help of the civil power, ’tis a sign, I apprehend, of its being a bad one. …. 2000 Years of Disbelief, by James A. Haught

Religion I found to be without any tendency to inspire, promote, or confirm morality, serves principally to divide us and make us unfriendly to one another.

THOMAS JEFFERSON
Shake off all the fears of servile prejudices, under which weak minds are serviley crouched. Fix reason firmly in her seat, and call on her tribunal for every fact, every opinion. Question with boldness even the existence of a God, because, if there be one, he must more approve of the homage of reason than that of blind faith. …to the Danbury Baptist Association on Jan. 1, 1802;

Believing with you that religion is a matter which lies solely between man and his God, that he owes account to none other for his faith or his worship, that the legislative powers of government reach actions only, and not opinions, I contemplate with sovereign reverence that act of the whole American people which declared that their legislature should ‘make no law respecting an establishment of religion, or prohibiting the free exercise thereof, thus building a wall of separation between church and State. ….The Writing of Thoma Jefferson Memorial Edition, edited by Lipscomb and Bergh, 1903-04, 16:281

…the legitimate powers of government extend to such acts only as are injurious to others. But it does me no injury for my neighbor to say there are twenty gods, or no God. It neither picks my pocket nor breaks my leg. ….Notes on Virginia, Jefferson the President: First Term 1801-1805, Dumas Malon, Boston: Little Brown and Company, 1970, p. 191

…no man shall be compelled to frequent or support any religious worship ministry or shall otherwise suffer on account of his religious opinions or belief, but all men shall be free to profess and by argument to maintain, their opinions in matters of religion, and that the same shall in no wise..affect their civil capacities. ….”Statute for Religious Freedom”, 1779, The Papers of Thomas Jefferson, edited by Julron P. Boyd, 1950, 2:546

I could go on and on. But I’m not about to try to teach historical facts to those Righteous people who obviously never got educated beyond what they’ve been told is in the Bible.

No, Righteous, it’s neither me nor my ilk who make other peoples look at this country with hatred and resentment. It’s neither me nor my Blue Brothers and Sisters who treat other cultures, lifestyles, and personal beliefs with such disrespect, misunderstanding, and righteousness that the seeds of potential terrorism are ungraciously fertilized.

My Blue America doesn’t require that everyone believe that the Ten Commandments of the Old Testament are the rule of law of the land. My Blue America requires that every citizen abide by the Constitution and Bill of Rights. In addition to that responsibility, they have the right to embrace the Old Testament and its Ten Commandments, and/or the New Testament teachings of Jesus, or the teachings of Upanishads or the Koran, or the Tao te Ching.

My Blue America does not pretend to be perfect. It does not insist on being Christian.

As the PBS series The Meaning of America explained:

Beyond the symbolism of flag-waving and patriotic cliches lies the heart of American Democracy: our system of personal rights and human dignity. Conceived in rebellion against the absolute right of monarchs, the American revolution asserted that the people are sovereign, that they must be free to speak, to choose their leaders, to pray — or not to pray — as they wish. Messy,highly imperfect and in need of constant maintenance, it is a system that confers on us the priceless gift of human freedom.

Amen, amen, I say to that.

Addenda:
— as one might expect, the email address left by the cowardly Righteous was bogus.
–Much of my original interest in the the legacies left to this country by the Six Nations was stirred up while I worked in the New York State Museum, where the histories of the Hau de no sau nee are preserved and revered. It was there I learned about the status and influence that women, especially older women, held in those Native American communities. Among all of the important democratic legacies of the Six Nations that our American system has discarded is the fundamental role of the Clan Mother, the Crone. Dr. Friedberg explores those legacies in her “Death of Democracy” article (no longer online).
— However, these other pieces by her are available:
http://www.opednews.com/friedberg_111504_media_whitewash.htm
http://www.opednews.com/friedberg_111104_america.htm
— You also might also take a look at a piece written by The One True b!X shortly after the election of George W. Bush, which was the inspiration for my Radical Rosie image/post.
— other relevant posts by b!X (who is becoming an expert on the separation of church and state) can be found among the other pieces here.

Our Secular America: the truth is out there (part 1)

Every once in a while I get obsessed about some issue — usually not a minor one. I try to deal with my obsessions with some degree of intelligence.

Occasionally I do a really worthwhile job, and so before I embark upon several posts that are developing from my current obsession, I’m going to share some evidence of my credibility, my ability to do a worthy job of intelligently obsessing.

More than six years ago, I posted a piece that is no longer accessible online because some of my archives were lost when I switched from a MoveableType to a WordPress blog format. But I did have the text saved as a document and it will be my next post.

Right now, however, I am self-servingly sharing part of an old post with the response I got to that six-year-old piece from a (then) doctoral candidate at the University of Chicago. And here it is:

Hello Elaine,
I recently discovered your website, and was so delighted (and sincerely impressed with the very good content) that I mention it in my most recent column, “Voices of the Peoples” at the ClarkPost. This month’s column is called “The Death of Democracy in America: The Foundering Fathers and the White Roots of Peace” and includes a paragraph or two about your site.

I do hope you’ll understand my discussion of your site in the appreciative and playful spirit it is intended. It is a wonderful place to visit.

Another dissenting Crone,
Lilian Friedberg, PhD
Cognitive Dissident

Dr. Friedberg’s piece [no longer available online] is long but worth reading for the well-researched perspective she gives not only on the death of democracy in America, but also on its origins and the misconceptions most people have about its development.

Of course, to me, the best parts are what she says about Kalilily Time, which I post here with a big dissident smile on my face. Note that the kitschy clip art to which she refers was the design of my old format.

To my cognitively dissonant delight—one ray of inspiration did appear on an otherwise dim string of search results which led me to the weblog of Elaine of Kalilily, Self-Proclaimed Resident Crone of Blogdom, who also describes herself as a “True Blue American,” and whose blog entry for November 5, 2004, “My Blue America,” glimmers with subtly placed signs of hope. The real gems are buried in the links she supplies: truths debunking myths of Puritans fleeing religious persecution only to export it to the colonies in the form of domestic tyranny abroad, truths about witch-burnings, and about the foundational principle of genocide underlying the birth of this nation—on a link that’s worth singling out here, since it’s rather cleverly cached behind a hyperlinked reference to the military that benignly obscures the page’s content. [link no longer works] (Genocide and The American Indian Peoples)

Nor did I leave Kalilily’s site without finding the scoop I was looking for on the founding fathers, in particular as they relate to the third part of this essay, The White Roots of Peace—but we’ll return to that in a moment.

Emoticons cannot express my response to the quality and truth content of these treasures on a site that looked, at first blue blush, to be an exercise in kitsch- and cupcake-artistry. Just goes to show, never judge a blog by its clip art.

About the time I hit the genocide link, I went back and, with a quizzed “who-the-hell-is-this-person” look, and clicked on the “ABOUT ME” link. Voila!: My faith in the American people restored. At the risk of offending the self-proclaimed Crone of Blogdom, I must admit what first came to mind: “Well, I’ll be damned,” I thought, “it’s just a little old retired grandma sitting there raising hell at the keyboard!” (That wouldn’t be an altogether fair assessment of a rather accomplished career woman and crafty writer who truly has earned her Crone-Coronation, so I invite the reader to read her site for the rest of the story.

And it was on Elaine of Kalilily’s site that I found one of the spokes in the wheel I was hoping to “uninvent.”

The people of the Six Nations, also known by the French term, Iroquois Confederacy, call themselves the Hau de no sau nee (ho dee noe sho nee) meaning People Building a Long House. Located in the northeastern region of North America, originally the Six Nations was five and included the Mohawks, Oneidas, Onondagas, Cayugas, and Senecas. The sixth nation, the Tuscaroras, migrated into Iroquois country in the early eighteenth century. Together these peoples comprise the oldest living participatory democracy on earth. Their story, and governance truly based on the consent of the governed, contains a great deal of life-promoting intelligence for those of us not familiar with this area of American history. The original United States representative democracy, fashioned by such central authors as Benjamin Franklin and Thomas Jefferson, drew much inspiration from this confederacy of nations. In our present day, we can benefit immensely, in our quest to establish anew a government truly dedicated to all life’s liberty and happiness much as has been practiced by the Six Nations for over 800 hundred years. The Six Nations and the Oldest Living Participatory Democracy on Earth.

More than six years have gone by since I wrote the lost-in-cyberspace “My Blue America.” The dispute over the origins of our secular democratic roots has reached disturbing proportions, and, sadly, many of the most vocal political people in this country still don’t get it.

So, watch for my re-post of “My Blue America,” which will be Part 2 of my series on “Our Secular America.”

Dear Brian Williams and NBC

I sent this email to NBC the other day. Since I haven’t heard anything back, I figured that I’d try it here:

I am writing on behalf of six women, ages 50 to 70 – friends for decades who often spend our time together discussing politics and what would we do if we had the power to initiate change. We often – only half in jest – insist that we have the broad knowledge and experience among the six of us to run the country better than the men currently in charge.

Yesterday, we brainstormed, way into the evening, about what might be done to counteract the vitriol and misinformation generated by the extreme Right. Other than giving Rachel Maddow a prime time spot on NBC (which, we pragmatically recognize isn’t going to happen), we came up with this strategy for your consideration.

Brian Williams is just about the most respected newscaster out there, and his audience crosses the spectrum of political views.

At the end of each NBC Nightly News Broadcast, Williams should spend the last five minutes doing a version of Maddow’s “Debunktion Junction,” in which he presents hard facts that dispel myths being presented as fact by both the Right and the Left.

Brian Williams has the deserved reputation of presenting the news without bias, and, unlike Maddow (whom we love, by the way), his news programs reach citizens with a broad spectrum of political viewpoints.

We need a “political mythbusters,” a 2011 “Sgt. Joe Friday” to drag into the net of misinformation “just the facts.”

the chalice of pain

This is my response to Magpie Tales’ visual writing prompt #42. You can find the responses of others by going here.

The Chalice of Pain

Father, if it is possible, let this chalice pass from me! Father, all things are possible to thee, remove this chalice from me!

Pain. We all feel pain. We all would rather not feel pain, and those in pain usually can let you know where it hurts and how badly it hurts.

Except if they have dementia.

There is a false assumption that those with dementia don’t feel pain because they often can’t articulate that fact in ways that are obvious — especially with words.

From “Pain and Dementia,” referenced above:

Over time your family member may lose the ability to speak or may not make sense when they do. Therefore, it is very important to be able to recognize behaviours or actions that indicate pain. Some of these pain-related behaviours include the following:
* frowning, grimacing, crying
* swearing, moaning, calling out, noisy breathing
* fidgeting, pacing, rigid posture
* guarding an area of their body, not wanting to move
* hitting or striking out
* withdrawing or resisting when someone is helping with personal care
* refusing food
* change in appetite, rest periods, or sleep patterns
* increased confusion, crankiness, or distress

From “Behavioural Changes”:

* Sudden changes in behaviour are important to recognize as these are often the only clue that an older person is sick, getting worse in their dementia, becoming depressed, or having a side effect from a new medication.
* Attention to your family member’s behavioural and psychological symptoms are key to improving and maintaining their quality of life.

A recent PBS Frontline program, “Facing Death,” documented the pain suffered by both family (emotional pain) and those dying from dementia and other illnesses (both emotional and physical pain.) You can watch the program at the above link. Also of great insight are the comments left by viewers.

From “What happens when elderly people die?”

…fewer than one in five people can have a peaceful end, since ‘dying is a messy business’ for which relatives are unprepared. He continues: ‘Too often, patients and their families cherish expectations that cannot be met, with the result that death is made all the more difficult by frustration and disappointment with a medical community that may be able to do no better.’

Relatives who expect aware deaths may become angry and turn their anger onto doctors and nurses when death takes other forms. Dying people often need psychosocial support, but the potential for introducing this occurs only when the dying phase is identified. This is not always possible in trajectories 2 and 3….. [2) long-term disability with periodic exacerbations and unpredictable timing of death that characterize dying with chronic organ or system failures (some cancers that respond to treatment and then relapse come into this category); (3) self-care deficits and a slowly dwindling course to death from dementia.]

After watching the Frontline program and hearing how the doctors explain the options to the families of dying patients, it seems to me that there needs to be more honesty from the medical profession about the dying process, its inevitability, and the benefits to the dying of making those patients as pain-free as possible.

Maybe, because I grew up above a funeral parlor operated by my father, a funeral director – maybe, because I sat at my father’s bedside while it took days for him to die of cancer (his mind was alert and he chose to die at home with a certain amount of pain) – maybe because I survived the excruciating pain of a breech birth and thought I had died and now I’m not afraid to die – I feel strongly that, when death is close at hand, it should be welcomed as a relief from pain and that pain (for example, of old organs failing, of agitated dementia) should be aided by pain-relief medication.

On my bookshelf is “Final Exit,” which I bought a long time ago out of curiosity about peaceful “self-deliverance” when my time comes, especially if that time comes riddled with pain.

But it becomes a lot more complicated if a form of dementia has stolen my ability to communicate my pain and my wishes. My daughter knows that I’d rather die in peace than die in pain.

In the story of the Garden of Olives, even Jesus pleaded for the chalice of pain to be taken from him. No one wants pain, although we often are willing to bear with a certain amount of it if it’s going to get better. But the pain of dying does not get better.

Somehow we need to be educated about that fact so that we hold the best pain-free interests of our dying relatives in mind.