Death With Dignity

The case for “Death with Dignity”

I have a unique relationship with death. My father was an undertaker, and we lived in an apartment above his business. Contemplating death and dying — my own and others’ — has been a part of my life since childhood. I have sat vigil during the hours and days of the deaths of both of my parents. At the age of 77, I am closing in on my final years. I have no control over when or why I will die; but I am learning about the choices I have about “how”. What I have come to believe is that it doesn’t matter what one believes about an “after-life”; what is important is to live fully while embracing the fact that we, after all, are all “terminal.” Those individuals whose religious beliefs preclude them from participating in such a process can follow the dictates of their religions, but those of us who have different beliefs should be allowed to make our own choices.

The Commonwealth of Massachusetts is once again considering a Death with Dignity bill. Modeled on the Oregon law, H 1991, Compassionate Care for the Terminally Ill Act, would give terminally ill people more freedom, control, and peace of mind at the end of their lives. It is called “The End of Life Options Act”. I noticed that both the Northampton City Council and the Amherst Town Meeting passed resolutions in early November that called on the legislature to enact “The End of Life Options Act” (H1194 and S1225). I urge other municipalities to become familiar with the intent of this bill and take action to lend their support.

Seven out of 10 Americans who support the end-of-life option allowing qualified terminally ill people to end their lives through physician-prescribed medications support having a process to enable terminal patients to choose how they want to die. Such laws have enacted and practiced successfully in other states. I believe this bill has strong safeguards to ensure that no one – including people with disabilities, the frail elderly, and the low-income –could be coerced or pressured to end their lives rather than live longer or seek continued treatment for their terminal illness.

This is NOT assisted suicide, but rather an option to give people the right to choose to end their suffering (and that of their family) when faced with a prolonged and painful dying process.

I support this bill because I have sat by the beds of both parents as they suffered through their last days and hours of pain before death took them. When my father was in the last stages of pancreatic cancer in 1984, thankfully, we were able to use the services of Visiting Nurses (this was before Hospice was available) to give him drops of morphine while he lay in his bed, gasping for air and enduring a level of pain I can’t even imagine. It took him three days to finally die.

My mother, who died at the age of 94 in the “Comfort Care” unit of a hospital, hung on for a week with renal failure, until I finally insisted that the doctor increase her morphine dosage. A “Death with Dignity” Act would have spared both my parents painful deaths that, at that point, were inevitable anyway.

Please join me in contacting the co-chairs of the Joint Public Health Committee:  Sen. Jason Lewis (jason.lewis@masenate.gov, 617-722-1206) and Rep. Kate Hogan (kate.hogan@mahouse.gov, 617-722-2130). Urge them to pass H1194 before the deadline in early February.

For more of my musings about a better way to die, see my blog post: https://www.kalilily.net/2011/10/22/dealing-with-that-disturbing-d-word-being-a-midwife-to-the-dying/

Tomorrow is Veterans’ Day

Desert Storm: A Family Scrapbook

Someone’s son huddles
gravely under desert rain.
restless as his heartbeat,
he waits for signs in the sky
to turn the taste of metal
in his mouth to blood.

Someone’s daughter,
leather jacketed, baseball capped,
takes her place in U.N. Square,
lights a candle against the wind, and
joins her voice to the hymn
that pulses like blood
through the streets, through the night,
through the weary dreams of men
reduced to war.

Someone’s daughter runs
from classroom through snow,
stuffs her duffel to bursting
with camouflage and conviction,
prays for the chance
to set the skies ablaze with truth.
At the table of her father’s house,
she waits for orders
and watches the colors of dawn
melt like blood into sand.

Someone’s son
boards a bus at midnight,
sheathed in a confusion of
army surplus and disbelief.
He joins the dawn in Lafayette Park,
seeking solace – if not answers –
in the steady drum,
the solid hands,
the strong songs
of sons and daughters
refusing to bleed
for the dreams of weary men
reduced to war.

(Elaine Frankonis 2013)

GUNS AND PENISES

Google it. Lots of stuff out there about that.

As I was strolling around my peaceful and gun-free, politically Republican neighborhood just now, I had this epiphany. Well, really, Freud had it before me, but sometimes a cigar IS more than just a cigar.

Posts on FB made me contemplate how I feel about guns – and penises. Because I don’t dislike either, and believe that each has a legitimate place in life. While I don’t want or own a gun, that has not been the case in my past life as far as penises go. But I really wouldn’t want to walk around the street seeing either of them hanging out of insecure men’s pants.

Guns and penises. Think about it (and I’m sure many psychologists continue to do so). Just the word “cock” brings up images of both artifacts. And you can use either to “shoot your wad.” Each can be used for violence, and it is usually men who use both for both.

They are both useful, in their place. And both can be dangerous in the wrong hands. (ahem)

I’m sure you’ll correct me if I’m wrong, but as far as my research shows, all of the mass shootings and bombings in America have been perpetrated by men. (I think they were all white men, but that’s not the point here).

Penises and guns. I’d bet my bippy that men who are out-of-control gun fanatics also have some sort of issue about their penises. If you can’t shoot one as well or as often as you want to, how about shooting off the other. If you can’t display your penis in public because it’s illegal, then display your gun, right?

Oh, yes. Guns are fun to shoot. So is sex. But there is a time and a place.

I think it’s interesting that gun fanatics say “I’ll give you my gun when you pry it from my cold dead hands.” I bet that they feel the same way about their penises.

Yes, there are plenty of women who like to shoot guns too. There is sense of power (I am told) in shooting off an automatic weapon. I understand needing to feel some kind of power in a culture that has made so many of us, men and women, feel impotent. Power and impotence. Guns and penises.

I have a 15 year old grandson, who plays Grand Theft Auto. I also have a daughter and son-in-law who continually have conversations with him about the the issue of guns and violence, and long ago taught him the difference between fantasy and reality. Actually, the three of them sometimes game together. But it’s their thing, not mine; I play Candy Crush Saga.

Guns and penises. I think there needs to be a whole lot more research into how their essences overlap.

Now, you might bring up the issue of breast feeding in public as some sort of parallel to guns and penises. I have my own middle-of-the-road feelings about that, too.

But for now, it’s Candy Crush Saga.

Grace and Frankie Use the “M” Word.

For those without Netflix, Grace and Frankie is into its third season as a comedy about couples in their seventies. (Warning: this post includes “spoilers,” but I don’t think they will take away from any of your enjoyment of the series.)

Frankie (Lily Tomlin) and Grace (Jane Fonda) are two very different women in their 70s living together at a beach house which they used to share when they were married to their husbands (who have come out as gay).

I will get to the “M” word eventually, but first I want to comment on the beautifully developed elder characters that the two actresses portray. They are feisty, quirky, impatient, forgetful, caring, independent, irreverent, maternal, and forgiving. They are the Golden Girls for this oldest generation of the 21st Century.

While very few women in their 70s are as wrinkle- and cellulite- free as Fonda (who looks and dresses like a model in a Neiman Marcus ad), she is believable as a traditional retired businesswoman. Tomlin, with graying hair, a few wrinkles, and outfits that must come from the Gudrun catalog, is an ex-hippie artist – about as opposite from her housemate as possible.

Sally Field & Penelope Wilton

There is a part of me that would rather have had someone play Grace who is less physically “reconfigured” than Fonda – like maybe Sally Field or Penelope Wilton, who, although not yet in their 70s allow themselves to realistically portray elder women wrinkles and all.

However, Fonda has won me over, despite her almost flawless skin and size 2 body. She and Tomlin play off each other with excellent timing and consistent characterization.

Frankie smokes weed and gets Grace to admit she MASTURBATES. Yes, that’s the “M” word that brings the women together to invent and produce a vibrator for elder women, whose arthritis often impedes their pleasure.

Grace and Frankie hilariously find ways to deal with just about all of the emotional and physical challenges faced by women over 70. There are three seasons available on Netflix, and it’s the only contemporary series I have found that is appealingly honest and charmingly irreverent about life in its last quarter.

Sheen and Waterston

While I am focusing on the female characters, they are given a run for their money by their gay ex-husbands (a sweet, believable, and delightful pairing of Sam Waterston and Martin Sheen).

We need to insist that Grace and Frankie start a trend of movies and series about elder women.

Kate Burton in “Grimm”

After watching the last episode of Grimm, in which the eldest female of the Grimm family (played by Kate Burton) pulls a sword from her cane and lops off a piece of the monster, I am rooting for a character like that in a new fantasy series.

The Crone’s time has come.

I have a problem with violent computer games

Why did the kids put beans in their ears?
No one can hear with beans in their ears.
After a while the reason appears.
They did it cause we said no.

(from The Fantasticks)

Like most folks over the age of 50, I have a problem with violent computer games, such as “Grand Theft Auto.” I’ve never played any of them, but, like many young folks, my 13 year old grandson does.

gtaOn one occasion, I look over his shoulder as his avatar – a strong, white, adult male, – climbs into his Super Sport Bugatti and sets off on a heist. The bank robbery hits a snag and he and his partner have to shoot their way out, killing the security guard. He makes it back to his virtual apartment with the designated “payout” stashed in his virtual account. He will use those earnings to buy more cars. Or maybe a helicopter or a yacht, depending on how wealthy he becomes. The graphics in this virtual world are realistic and compelling, a quantum leap in design and process from the “Space Invaders” arcade game of my generation.

“Hmpf.” I say to him. “I don’t like these killing games.”

“Grammy,” he says, with a patience that belies his age. “It’s like playing a part in a movie script. It’s fantasy. I know the difference.”

I know, and his parents know, that if he is forbidden to play, he might find a way to do it anyway, and the stress it would put on family relationships would not be worth it. The answer to this dilemma is not for the adults to say “No,” but rather to try to understand what this gaming culture is all about and how to ensure that the young players don’t internalize a wrong message.

For my home schooled grandson, well versed in morality and ethics, his gaming goal is not to kill anyone but to complete the assignment (although characters can get killed along the way). Granted, there are other gamers who get delight in escalating the violence just to see what they can get away with. That’s what I have a problem with out of a concern that they will become inured to the horrors of violence and start confusing fantasy with reality. Hundreds of contradicting studies have been done – and continue to be done – that both affirm and deny the ill effects of playing violent computer games.

The culture of my family is to try to understand where the other person is coming from before any decision is made, so my grandson has explained to his parents his approach to gaming and they have shared their concerns. It reminds me of when my 10 year old son became obsessed with comics during the time in the 1980s when many of the publications began to use illustrations with hyper-sexualized female superhero bodies. I remember having a long talk with him, expressing my feminist disapproval of such depictions of women and reminding him that it’s all fantasy.

I have embarked on a long learning curve that involves my grandson explaining how the game works, which is a complex process, on the part of the gamers, that involves planning, coordinating, and cooperating in setting up each heist. While the game program itself establishes parameters, the gamers make specific choices and have to deal with the consequences.

There are other modules that are available for GTA, my grandson tells me. His favorites are the ones in which his character is a fireman or policeman or emergency medical technician. While the scenarios for those modules can include violence, it is always because the protagonist is trying to rescue someone.

What I am learning gives me a more informed appreciation and understanding of why my otherwise non-violent teenage grandson likes to play “Grant Theft Auto.” And the conversations continue.

I see that what he is taking away from playing these games is so much more than I would have ever considered. For example, he has to budget and manage his virtual money so that he can afford to buy the new luxury items that he wants. In the process of researching cars, he has developed a knowledge of automobiles – both ordinary and classic – that is encyclopedic. He experiments with designing the appearance of his cars, playing with colors and shapes. He has forged online friendships with other players his age from around the world as they work together to develop strategies for their heists. He is honing his reading skills as he keeps up to date on understanding the evolving rules and improvements in the game.

Because he was not told “No” and instead was invited to share his gaming experiences with the family, the problem other families might have with the issue of violent computer games is not a problem for us — although I still really don’t like them. It’s probably a generational thing, as it often is with music, fashion, language, and etiquette. But I learn to appreciate it all. Like Walt Whitman, “I contain multitudes.”

Mother’s Day: for my kids

(I started posing this on Mother’s Day ten years ago, and I try to remember to re-post it every year.)

Some women take to mothering naturally. I had to work at it. And so I wasn’t the best mother in the world. I would have worked outside the home whether I had become a single mom or not. And because I did, mine were latchkey kids, with my daughter, beginning at age 12, taking care of her younger brother, age 5, after school. I left them some evenings to go out on dates. Oh, I did cook them healthy meals, and even cookies sometimes. I made their Halloween costumes and went to all parent events at their schools. My daughter took ballet lessons, belonged to 4H (but I got kicked out as Assistant Leader because I wouldn’t salute the flag during the Vietnam War). I made my son a Dr. Who scarf and took him to Dr. Who fan events. I bought him lots of comic books, invited friends over to play, and taught him how to throw a ball.

But most of all, I think/hope I did for them what my mother was never able to do for me, — give them the freedom and encouragement to become who they wanted to be — to explore, make mistakes, and search for their bliss. I think/hope that I always let them know that, as far as I was concerned, I loved them just the way they were/are.

Not having had that affirmation from my mother still affects my relationship with her. I hope that my doing that right for them neutralizes all the wrong things I did as they were growing up.

So, you two (now adult) kids, here’s to you both. You keep me thinking, you keep me informed, you keep me honest, and, in many ways, you keep me vital. I’m so glad that I’m your mother.

So, in memory of those not-always-good ol’ days that you two somehow managed to survive with style, here you are, playing “air guitar and drums” — enjoying each other’s company sometime in the late 70s and bringing so much delight into my life.

airguitar

Vigil Eve

I am no longer with my extended family for the holidays. Our life’s lessons have brought us to different places, literally and metaphorically. But there was an important time that we shared, and I celebrate those times of endearing family gatherings, before our realities diverged and they developed a need to pray for me.

And so I post these, remembering my extended family with nostalgia and also with an appreciation for even the tenuous connections that still exist.

They pray. I write.

Vigil Eve (“Wigilia’ 1950)

There was no mistaking this immigrant clan
for anything but a matriarchy,
bringing from its Polish homeland
the fundamentals of family, earthy foods,
a deference to the will of the grayest female.

The men earned hard money, revered their vodka.
as it was on the farms of the old country.
The rest was woman’s right and work.
So, when the magical time of Vigil Eve drew near
the men disappeared into their smokey enclaves

to share storied fatherland memories,
while the women gathered in her kitchen
a determined lineage of daughters,
by birth and marriage, armed with
the culinary legacies of generations.

Her enameled kitchen table, an assembly line
of dough, tools, bowls of rich concoctions,
filled with reflections of final farm harvests.
For days, they rolled floured, filled and pinched,
boiled, browned and layered.

We children sat at the floor, eye level to legs
in a corner of the steamy kitchen,
playing with scraps of pasty dough,
lulled by the soft humming of female voices,
the steady rumble of snowy urban streets.

The night of Vigil Eve flowed with prayers and feasting,
as full families gathered at the gray lady’s call,
reviving ancient rites of pine and light,
to sing the language and history of their people
carried across oceans of fear and hope.

They sang of homeland yearnings for freedom and faith,
of the tears of mountaineers displaced and despaired,
of the battles of heroes to free the heart’s land,
of mystical mothers and magical births.

Generations of voices in harmony
drifted through the lace-curtained windows
opened to the cold winter night, the night
when animals talked, wishes were granted,
and ancient rituals forged the bonds of blood.

———–

Heart of Rom
(an earlier version published in The Berkshire Review, Volume 4, 1996)

Cyganka! My grandmother scolds,
as I bound off the front stoop
onto the wet city street,
propelled by the promise of stolen kisses
and the musky taste of Tangee
still slick on my lips.

Gypsy. Even the word brings blood
blood rushing to the pit of my stomach.
How I wish for the wild hair,
dark eyes, skin like old copper,
for a power ancient as the land,
the sweep of continents
and countless untamed hearts.

She ruled us with her will,
that Polish grandmother –
a small strong-handed woman
with a voice of faith-forged mettle
and a back turned straight against
truths too bold to hold.

Yet, they tell me once, as I lay young and dying,
she revealed her family secrets:
holy candles, crystal cups, vials of spirits, leeches,
while my mother watched from shadows
fighting demons with her eyes.

They tell me, when the priest arrived,
surprised to find the child alive,
he never commented on the faint red circles
following the tender length of spine,
the scattering of blood marks along the back
like ancient glyphs on altar stone.

an old poem

Every once in a while, I scroll through this blog, re-reading stuff I wrote and forgot. Today I found this short poem.

Some say the world will end in fire,
a sudden spike of life and then the glory.

But for her, it was a slow fall into
the cold of oblivion, the bones of her face
sharding like ice, her fingers blue crystals
clutching frigid white sheets,
sliding toward the final winding.

Had my mother lived, she would have been 99 this month. But it’s good that she didn’t, given her severe dementia at 94. A longer poem I wrote about that has been accepted by Caregiver magazine.

Those Christmas Cookies

My cousins in downstate New York are all ready for Christmas with their cookies, posting photos and recipes on Facebook and making me feel inadequate as a grandmother.

My mother started baking after Thanksgiving and didn’t finish until the day before Christmas Eve. Christmas Eve, after all, was always the extended-family gathering at my own grandmother’s for the Polish Wigilia, a meatless night of eating and drinking and singing “Koledy,” Polish Christmas Carols.

When I moved away decades ago, I drifted away from those traditions, and, not really being into housewifery, I didn’t get into the baking, either.

One of my mother’s specialties was “pizzelles,” which are of Italian origin, but that didn’t stop my mother. She got the recipe from her Italian sister-in-law and each year gave everyone in the family a batch of her homemade pizzelles — which are made on a kind of waffle iron and which take an awful lot of time to make. You have to pour each one separately and then stand there while the hot gadget bakes them. Then you have to remove each one separately and set them carefully aside to cool and harden.

One of the few things I took for myself after my mother passed away was her pizzelle maker, and this year I unearthed it from the cellar, cleaned it up, googled a recipe, and made a batch that I will take to my daughter’s in-laws on Christmas Day.

I found that I actually enjoyed making them — something about the meditative calm of the repetitive task, the memory of my mother humming softly while she poured, clamped, waited, opened, and gently removed her perfectly round and patterned pizzelles.

Mine are not so round or so perfectly patterned, but it was my first try.

My mother always bought — rather than made — one kind of pastry for the holidays. She called them “bow ties” and got them especially for my son, who loved them. They are really Jewish “egg kichel,” and this year I ordered some from Etsy and sent them to my son in Portland OR in memory of my mom. He said that they were just as good as he remembered.

I don’t have many Christmas traditions (especially since I don’t really celebrate the religious holiday) but I think I will make making my mom’s pizzelles one of them from now on.

Mag #242

Magpie Tales is a blog “dedicated to the enjoyment of poets and writers, for the purpose of honing their craft, sharing it with like-minded bloggers, and keeping their muses alive and well.” Each week, it offers an image as a writing prompt.

Go here to read what other writers have written in response to this prompt.

mother

If we become the mother
we wanted, our children
grow the roots and wings
of our lost early yearnings,

Our daughters become
the women we wish we were,
our sons the men we dreamed.

But too often we succumb
to the echo of her voice,
trapped in the tangle
of a cord never cut.

There is no burying our mothers,
though we lay them deep.
They live in us one way or other,
whether we heed or not.