Category Archives: insomnia

Like Lazarus

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Like Lazarus, this personal blog periodically comes back to life. This time in the midst of major world crises — war and death, planetary destruction, political insanity.

I am feeling lost in the middle of all of this — tired, unconnected, useless.  The tiredness is overwhelming.  Nothing inspires me.  So I sit down to write to try to tap into that place deep within me where there must still be signs of life.  It takes an effort just to do that much.

I  continue to struggle with the inability to fall asleep.  A combination of Abilify and Melatonin seems to have begun working.  Time will tell.  The Abilify was prescribed (added to my depressive meds) because last year I was diagnosed with Bipolar 2, which means, while I don’t get manic, I do have periods of significant mood swings that affect my life.

But I am still tired during the day, and nothing seems to pique my interest — no crafts, no projects…  I only occasionally leave the house.  It doesn’t help that the magnificent maple tree outside my window is intently shedding dry brown leaves instead of turning its usual Autumn color palette. The brittle leaves are piling up in inches-thick mounds.

Notice that none of my neighbors have leaves in their yards.  It must annoy them to have the breezes send some of ours onto their well-manicured lawns.  My son-in-law usually mows the fallen leaves into mulch as the season progresses, but this pile-up is overwhelming.  When he has time, he will figure out what to do with them.

I have plenty of time, but I can’t seem to figure out what I want to do.  I check the calendar my senior center and circle programs to consider.  But all I do is consider.

The one thing that keeps me going is my relationship with the man to whom Match.com accidentally sent me, even though I canceled my subscription years ago.  The same age as I am, and a fellow Pisces, he amazes me with his perseverance and positive attitude. We both struggle with health issues (I had my right knee replaced last June), and we live an hour’s drive apart. So getting together can be a challenge, but we manage.  And having lunch every other Friday with him and his sister is also an incentive.

I saw something on the senior center page that I am considering.  They are looking for town residents to help “build an age-friendly community….help shape the future of an Age and Dementia Friendly East Longmeadow”.  Well, I sure know about age and dementia, and I sure would like to become part of some community.

Meanwhile, the poor Palistinian people are being annihilated.  Where is there justice in all of this? Gaza is about the size of Philadelphia; Israel in a little smaller than Massachusetts, but has a strong military.  Although Israel is fighting Hamas, it is killing  ordinary Palistinians who  have nothing to do with Hamas. Looks like David and Goliath, and Goliath is going to win. Why isn’t neighboring Egypt offering to take Palistinian refugees, who are caught in a cage with no way out?  Gaza and the innocent people in it are fodder. And America is backing Goliath.  At least, why aren’t we working with Egypt to rescue the women and children of Gaza?

 

Dear Diary: Of Course

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Of course, I’m late again. Of course I’m still trying to get my crazy sleep schedule under control. Of course I’m eating too much chocolate. Of course I’m still experimenting with medical marijuana, which is the only thing that can get me to fall asleep. Last night, I put some alcohol tincture in a glass with V8 juice. It tastes like a Bloody Mary.

It still took at least an hour for me to fall asleep, so while I was lying there, I listened to one of my playlists on Spotify. It includes most of the songs I liked over the past 50 years. As I listened, I realized that I could put the songs in an order that reflected where I was in my life at the time each song was popular. I might try to do that at some point.

Listening to each song brought back very specific feelings, some of which I wish I could choose to forget. I have always tended to make choices based on what I wanted or needed. It’s not that I didn’t consider the wants and needs of others involved; but, ultimately I did what I wanted.

When I lie in bed at night, waiting for the THC to kick in, I let each song take me back, like the images in a photo album, to past places. When my mind reviews what my life was like each time, I feel regret. Regret about how little I understood myself and what little wisdom I had. Regret that I never learned how to “plan” — financially, physically, inter-personally. Regret that many of my choices negatively affected other people. Regret that I must have been very emotionally immature.

Throughout these 80 years I never set long-term goals, but rather I took advantage of opportunities (which worked out fine as far as my various careers, but not so fine in terms of my various relationships.)

It’s obvious to me, now, that the men with whom I chose to have a relationship were chosen because I knew they would not be around long. (The exception was my late ex-husband, but that’s a whole other story.) I knew, instinctively, how to get them to leave when I was ready to move on. In the meanwhile, each contributed, in his own way, to something I wanted or needed in my life. (Perhaps I also knew, instinctively, that there was no one man who could give me all I thought I needed; and now I see that I didn’t particularly care what they needed as well.)

From the perspective of decades, I am finally realizing several things: I am a bit of a narcissist; I am good at manipulating situations and people; I need people more than they need me; I like beginnings and endings and don’t do well keeping things going in the middle; I never knew who I really was. I’m not sure I even do now.

Dear Diary: This is How It Is

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I have not been motivated to write on this blog.since the beginning of the year. Adjusting to chronic insomnia with no remedy that works is exhausting. It’s also depressing. As is the fact that I unknowingly sent my removable dental partial down the garbage disposal and so I have no front teeth until I can get to a dentist and go through the whole process all over again. And the fact that my plans to get some shots for my painful arthritic knee have been postponed while I shelter in place. And I planted some seeds indoors that are not doing well.

Yet, all of my “Little Picture” angst is just small potatoes compared to this frightening global pandemic exacerbated by the corruption and stupidity rampant throughout tRump’s America. This “Big Picture” is enough to make me not want to get out of bed in the morning. As life goes on, the more depressed I get.

They say that “depression is anger turned inward.”. Well, if I have a choice, I’m going with anger, which has fueled my writing before. So herewith, I will be indulging my Mad Old Lady anger while I still can. Feel free to commiserate in the Reply options.

I am challenging myself to write something every day; you can subscribe (see bottom of right hand column) to be notified when I post.

The Plague of Elders

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I don’t mean that we Elders are the plague; I mean an awful lot of us Elders are afflicted with the same “plague.” It’s called There are lots of kinds of insomnia and there’s no cure for any of them.   There are a host of “remedies”, however, and I have tried all of them (see the end of this post), to no avail.  So had the author of a book I read several years ago, Insomniac, by Gayle Greene.  The book was published in 2008, and you would think there would have been some progress made since then with a treatment that works.  I contacted Greene last year to see if she ever found a way rid herself of insomnia  Basically, she said no; all she could do is schedule her life around it when she can, take sleep meds when she has no other choice, and keep looking for a solution.

Here’s a review from The Journal of Clinical Sleep Medicine:   Insomniac, by Gayle Greene, provides an interesting perspective and offers support to those with treatment resistant insomnia. It also offers a fresh perspective to readers who are also medical providers. The author defines insomnia in a way that sets the stage for the discussions that follow, as “Insomnia is when you can’t get the sleep you need to feel good, for no reason other than that you can’t.” By the end of the third chapter, the reader has a very clear understanding of the problems faced by insomniacs.

Greene’s book is both a memoir and a research paper. If you don’t read the book, read the whole review.  Here are some of the facts she shares in her book

⇒ A third of the American population suffers from insomnia enough to complain about it; in people over 65, estimates are as high as 60 percent.

⇒  Sleep has little part in medical curricula today, when doctors get an average of one or two hours’ instruction in sleep and sleep disorders.  The patient with a chronic complaint of insomnia will usually be referred to a psychiatrist.

⇒  With all due respect, this is so ass-backwards, Greene states. The reason I want more sleep is so that I won’t feel depressed.  I need sleep not to avoid my life, but so that I can live it.

⇒  This is what she learned from interviewing a range of sleep researchers and experts (all given citations in her book).  We do not know….the nature of the basic neural mechanisms underlying primary insomnia.  Nor do we know the identity of specific neurotransmitters that might be involved, or even whether specific neurotransmitter systems are involved.  The genetics of the disorder are also not known.

⇒ The behavioral model (change your attitude, change your ways) has had, perhaps the unfortunate consequence of discouraging research into the neurobiology of the disorder.

⇒ Insomnia is a subjective state..  There’s no blood test that it shows up on, no biopsy or x-ray that picks it up, and it doesn’t even show up on the EEG….. How much easier it is to tell us, as many clinics do, that we have “sleep disordered breathing,” or apnea.

⇒  Exercise helps some people, but not all. “In order to make a difference, it has to intensive, enough to raise the core temperature (inside body temperature) to two degrees Fahrenheit for about twenty minutes, which happens with twenty to thirty minutes of aerobic exercise….. Since only people who are in shape can sustain vigorous exercise for twenty minutes or more, they’re the ones whose sleep is likely to be improved.

⇒  Some billionaire who has a relative with terrible trouble sleeping…should endow a private foundation. There should be patient advocacy groups for insomnia, but they’ll need to stay independent of the pharmaceutical companies.

I wish every sleep doctor would read Greene’s book, which explores the various and complex reasons why folks have insomnia, including the gut-brain connections and the individual ways that insomnia manifests itself.  For example, I have the kind that prevents me from even falling asleep, from having my brain trigger what Greene calls the “sleep switch.”  I get relaxed and tired, but that last step evades me.

At the end of this month, I will have a sleep study.  I am going to give the doctors there a copy of this post.

Of all of the remedies I have tried for my insomnia,  I have to admit that I like the effect of medical marijuana (and I like the buzz I get before I fall asleep).  But trial and error has proven that I need sometimes 4 times the recommended dose to have any effect on my sleep.  That would cost me several hundred dollars a month, and I can’t afford that.  CBD helps with my daytime energy and mood, but has done nothing for my sleep issues.  And it’s not cheap, either.

I even bought some EMF fabric shield to cover my electronics at night. At my age (80), doctors will not give me prescription sleep meds.  Hell, I’m 80.  What’s it going to do, kill me?  Not sleeping is killing me and is depriving me of having any kind of satisfying life.

I no order of chronology or non-effectiveness, here is a list of what I have tried.
  Soto Bio-tuner; hypnosis; environmental changes; behavioral modification; yoga breathing; every pain and sleep-associated OTC on the market; a range of herbal, amino acids, and other supplements (sometimes combined); oxycodone (I’m running out of my old dental RX; I only take it when I can’t take the sleeplessness any more); binaural beats; relaxation, meditation, and music tapes; hot showers; massage (when I can afford it); decades of depression meds; tapping……..

Badly arthritic knees and a troublesome torn rotator cuff preclude me from doing the kinds of exercises that might tire me out enough to crash into sleep.

“Set your alarm and make sure you get up every morning even if you are tired,” they tell me.  Yeah, sure.  After finally falling asleep at 3 a.m. or so every night, I’m not about to get up at 9.  Maybe 11.  Sometimes noon or later.  When I finally sleep, I often sleep deeply and have great dreams.  But I miss half of the day.

There are still no advocacy groups for and by insomniacs to help spread the word and urge researcher and doctors to keep digging to discover the biological insomnia triggers and causes. There are plenty of support/forums for patients, but all those do is give us more places to complain.